Walk for Ian and PTHS raises $11,000+
The Walk for Ian and Pitt Hopkins held on September 14, 2013 in Bedford, Iowa was a huge success! We will be donating over $11,000 that was raised for Pitt Hopkins Research! We had an amazing turnout, 250 people which included 4 PTHS families! We were so glad that Nolen Parkin (Jason and Kelly’s son of Urbandale, Iowa), Mason Skahan (Matt and Lesley’s son of Iola, Kansas), and Eli Adamson (Scott and Amy’s son of Baldwin City, Kansas) were able to join us! The one picture is of the boys leading the first lap around the track…it was so inspirational to have them lead 200+ people in a lap for HOPE!
Pitt-Hopkins fundraiser a success
Posted on September 16, 2013, by Nick Johansen
(Bedford) — A fundraising event to raise money and awareness about a rare affliction was a major success.
Trevor and Jessica Fletcher, parents of 8-year-old Ian, was diagnosed with Pitt Hopkins Syndrome in 2008. The disorder causes seizures, breathing problems, and gastrointestinal complications in kids. The disorder is very rare, and currently, only 250 people in the world have been diagnosed. The Fletchers organized a walk on the Bedford School track to raise money for the continued fight.
Jessica Fletcher says with the help of Bedford and the surrounding communities they raised over $11,000 to donate to the Pitt Hopkins Research Foundation. 250 people joined in the walk, including two from Kansas and one from Urbandale. In addition three other boys with Pitt Hopkins Syndrome joined their son Ian and joined in enjoy the day. They lead the first lap around the track.
The official awareness day for Pitt Hopkins Syndrome is September 18th.
