As we reflect upon 2017, our organization has seen fantastic growth and commitment, strengthening both our organization and the entire Pitt Hopkins community. Our researchers have made amazing strides in their efforts to find a cure for Pitt Hopkins syndrome. We have developed a PHRF Road to Treatment Plan, and are aggressively pursuing treatment approaches […]
Craig Thomas and Carter Bays who created How I met Your Mother at the original HIMYM Bar in NYC with the winners of their Charity Buzz Auction, Rafael and Eunice. Craig and Carter have always been staunch supporters of the Pitt Hopkins Research Foundation! Please visit additional Charity Buzz Pitt Hopkins Research Foundation Auctions!
Sarah Huffman was a very special and inspiring young lady and will forever hold a treasured place in our hearts. The Pitt Hopkins Research Foundation is dedicated to making a difference in the lives of individuals with Pitt Hopkins. Annah Moore, a Vanderbilt University Graduate Student, is a part of the Sweat lab that […]
“I think that right now there seems to be a really big push into research on rare diseases. All the rare diseases are collectively getting together and saying, “Hey, we’re here!” – combined together they make one big common type of genetic disease category. I think this is the day and age of rare diseases.” […]
We’re thrilled to announce a new partnership that will bring our resources in front of The Mighty‘s wide-reaching readership. We will now have our own growing homepage on The Mighty and appear on many stories on the site. The Mighty is a story-based health community focused on improving the lives of people facing disease, disorder, […]
2016 has been a tremendous year for the Pitt Hopkins Research Foundation. We are now supporting 7 incredible research projects. When we started, just 4 years ago, there was virtually no laboratory research being done on this exceedingly rare disorder. This growth means more scientists are focusing on Pitt Hopkins; more labs are working together […]
This year, The PHRF is deeply moved to award the “Ann D. Bornstein Gene Therapy Grant,” in honor of Ann Bornstein, aunt of PHRF president, Audrey Davidow Lapidus, and sister of PHRF board member Jeffrey Davidow, who passed unexpectedly earlier this year. The Bornstein family has been extremely generous to the Foundation over the years […]
FOR IMMEDIATE RELEASE Media contact: Jessica Fletcher, Director of Communications, information@pitthopkins.org Pitt Hopkins Research Foundation appoints new board members; recognizing a continued commitment to fundraising and research Los Angeles, Calif. (December 5, 2016) – Effective January 1, 2017, the Pitt Hopkins Research Foundation (PHRF) is proud to announce the appointment of three newly-elected advocates of […]
Madeleine Amelia DePersis Zarlengo has not only a big name, but a big burden to carry. She has Pitt Hopkins Syndrome. Despite her diagnosis, she is so light, effortless in her ability to bring joy to all and a provider of endless sunshine. It seemed only fitting that in honor of her second birthday, August […]
FOR IMMEDIATE RELEASE PITT HOPKINS: The Pitt Hopkins Research Foundation celebrates its fourth International Pitt Hopkins Syndrome (PTHS) Day to Raise Awareness and Funding for Pitt Hopkins Research Los Angeles, California September 6, 2016 –The Pitt Hopkins Research Foundation (PHRF) is proud to announce the celebration of its fourth annual International Day of Recognition for […]
