Please join us for the Walk for Braeden and Harper, Kennesaw, Georgia, on October 24, 2015. This event is organized by two very special aunts, Susan Martin and Twyla Strasburg, and the Vaughter and Strasburg families. Check In: 10:00-11:00 AM Walk: 11:15-12:15 Lunch & Games: 12:15-2:00 We will be serving hot dogs, chips, desserts, & drinks. This will […]
What do you say to somebody who has literally no connection to Pitt Hopkins, who somehow just randomly heard and been touched by one of our stories — and decided they want to help? Well, one of these angels is Andrew Cattle — who is riding across Death Valley, dressed as a Storm Trooper, no […]
WATCH OUT DALLAS, HERE WE COME! Announcing the 2016 Pitt Hopkins Research Foundation’s Scientific Symposium and Family Conference, November 3-5, 2016. We’ve got big shoes to fill after the DC Conference—but these boots make us think Dallas Texas will measure up just fine! More details to follow!
The Pitt Hopkins Research Foundation hosted our second Scientific Symposium and first ever Parent Conference at American University in Washington D.C. September 10-12, 2015. It was a fantastic event, full of great information and a wonderful time for families to spend together. Thursday, September 10, researchers presented on their research including talks on Discovery […]CONTINUE READING →
September is such a big month for our community. Our third annual Pitt Hopkins Awareness Day was celebrated September 18, 2015. We have people from 28 different countries across the globe in our Pitt Hopkins family. On the 18th we honored our precious children together!CONTINUE READING →
UCSF Pediatric Clinic Focused on Rare Pitt Hopkins Syndrome is Third of its Kind in the World By Juliana Bunim on September 02, 2015 http://www.ucsf.edu/news/2015/09/131486/ucsf-pediatric-clinic-focused-rare-pitt-hopkins-syndrome-third-its-kind-world UCSF Benioff Children’s Hospital San Francisco has opened the third Pitt Hopkins Syndrome (PTHS) clinic in the world, giving patients with this rare genetic condition access to an interdisciplinary team […]CONTINUE READING →
Our Foundation’s motto is “We don’t just hope for Miracles. We fight for them.” So proud and gratified to have so many joining our fight. The University of Texas Southwestern Dallas clinic is now officially open — furthering our dream of a clinical consortium focused on Pitt Hopkins care. Children’s Health opens new clinic specifically […]CONTINUE READING →