September is Pitt Hopkins Awareness Month!

In honor of all of our loved ones who live with this syndrome every day, we are dedicated the month of September each year to raising awareness and crucial funds to support research and clinical trials!

Check out our social media during this month to see updates and how you can get involved!

• Facebook: https://www.facebook.com/pitthopkins.org

• Twitter/X: https://x.com/PittHopkins

• Instagram: https://www.instagram.com/pitthopkins_rf/

• LinkedIn: https://www.linkedin.com/in/pitt-hopkins-research-foundation-824277263/

Thank you for your continued support of our foundation!

Mark your calendars! Join us for the 6th Annual Putt for Pitt Hopkins Golf Tournament on Friday, October 16, 2026 at Highland Park Golf Course in Birmingham, AL.

Every swing helps raise awareness and support for Pitt Hopkins Syndrome. Gather your team of four and spend a great day on the course for an even greater cause.

Register today –

Join us for an Externally-Led Patient-Focused Drug Development (EL-PFDD) Meeting, where individuals with Pitt Hopkins syndrome, families, caregivers, researchers, industry, and the FDA come together to share lived experiences and discuss the greatest unmet needs to help guide future treatment and drug development.

Friday, November 13, 2026

More details available closer to the date at pitthopkins.org/pfddmeeting