Race for Rylie raises $11,570 for PHRF in PA

On June 21, 2014 the Maginn family held their 5th annual Race for Rylie event, to benefit the Pitt Hopkins Research Foundation.  The Race was held at Nockamixon State Park- Marina bike trail, Quakertown, Pennsylvania. Five Pitt Hopkins families joined together that day!  A total of $11,570 was raised for research to find a treatment for PTHS.

Our mission is to increase awareness and research in the understanding of Pitt Hopkins Syndrome. Race for Rylie is an important annual fundraiser for the Pitt Hopkins Research Foundation. In 2013, we funded $330,000 of research for Pitt Hopkins Syndrome. We were able to raise more money this year for research with our new Pledge Participants option.