Maginn family: Pennsylvania Senate adopted resolution making 9/18 PTHS Awareness Day!

RylieSenatorsFour year old Rylie Maginn recently received a very important invitation! Invited by Pennsylvania Senator, Lisa Boscola, Rylie and her family visited the state capital building in Harrisburg on September 23, 2013 to advocate for Pitt Hopkins Syndrome. Senator Boscola gave a warm introduction of Rylie on the senate floor as she spoke about her early diagnosis, our online support group, and the recently formed Pitt Hopkins Research Foundation. Rylie was welcomed by all of the senators with a round of applause! Later a resolution was adopted declaring September 18th Pitt Hopkins Awareness Day in the Commonwealth. We sincerely thank Senator Boscola for taking the time to bring awareness to Pitt Hopkins Syndrome. Also, a big thank you to Rylie for being such an adorable ambassador for our Pitt Hopkins Family!

Video link of Senator Boscola welcoming Maginn family to the senate floor, September 23, 2013:

http://www.senatorboscola.com/wp-content/uploads/2013/09/BoscolaPitt.mov www.senatorboscola.com

 

Audio link of resolution being read to senators, September 23, 2013:

http://www.senatorboscola.com/media/audio

 

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