The first ever Pitt Hopkins Research Symposium was held September 19, 2014 at the Whitehead Institute for Biomedical Research at MIT. The event was attended by 60 researchers and parents alike, each side gaining a new perspective on this syndrome that plays such a critical role in many of our lives. In just two years, researchers from […]
The 1st annual Texas Trekkers event was a huge success! We had all five kids from the state of Texas at the event, one driving all the way from Houston. The five Pitt Kids in attendance were Ashton, Erinn, Lizzie, Matthew, and Sam. With approximately 150 participants at the event, we had a wonderful […]
Ella’s 3rd Annual Bounce Extravaganza was held on Sunday, September 28th in Rochester, NY. The day was filled with lots of fun things for the kids of all ages to do: zoo animals, crafts, music, dancing, karate, fencing, inflatables, and TONS of sports. There were two Pitt Hopkins “super E’s” present at Ella’s Event. Our […]
September 2014 marked an important month for PTHS families around the world, but this time it was even more special in Italy, where some of the almost 25 families with diagnosed children got together and constituted the Pitt Hopkins Syndrome Italian Association, making an official presentation on September 20th, right after the celebration of the […]
Dearest Eastside Eagles, It already seems like a dream that we were in Greenville celebrating Spirit Week with all of you, in large part because you all seem to good to be true. You are an exceptional group of human beings devoted to doing exceptional things. You understand, fully and completely, that a person is […]
September was such a huge month for our Pitt Hopkins family. On Sept 18, we celebrated our 2nd Annual Pitt Hopkins Awareness Day (AD). Our small but mighty group came together to celebrate our Pitt Hopkins community and raise awareness. This second awareness day was even more successful than the first! It was amazing to […]
The first ever Stand-Up for Pitt Hopkins comedy event was held September 9, 2014 at the Funny Bone Comedy Club in West Des Moines, Iowa. The event was a huge success, raising $9,500 to be donated to the Pitt Hopkins Research Foundation! We enjoyed a wonderful evening full of laughs with our family and friends! […]
Inspired by Ian’s 2nd Annual Walk for Pitt Hopkins held on Saturday, September 6th held was a success! We enjoyed a wonderful day of fun with great people supporting Ian and Pitt Hopkins Research. We enjoyed the day spent with two other Pitt Hopkins families that joined us for the event- Nolen’s family (the […]
Hosted by Eli Adamson’s family July 26, 2014 Baldwin City, Kansas. Our event was a success. We had 35-40 guests. My friends, Lesley and Jessica, 2 other Pitt Hopkins moms, did an awesome job of sharing with the group about how things got started (in 2008 with only 4 families diagnosed). They shared about how […]
A friend of mine from high school along with Nothnagle Realtors hosted a fundraiser for PTHS research in Ella’s honor Monday night. It was a truly overwhelming night for our family as the group raised $12,000 for PTHS research. Of the over 100 guests that attended we only a knew a select few of […]
