Our primary goal is to educate others about Pitt Hopkins Syndrome, promote understanding of this rare condition, and create a supportive community at peer level for school age
patients.

The Pitt Hopkins Research Foundation is committed to advancing research aimed at finding effective treatments and, ultimately, a cure for Pitt Hopkins Syndrome and related disorders. Additionally, PHRF is dedicated to supporting the Pitt Hopkins community through resource recommendations, parental guidance, and the latest medical information.