• Link to Facebook
  • Link to X
  • Link to Youtube
  • Link to Pinterest
  • Link to Instagram
  • Link to LinkedIn
  • Current Projects
  • Latest News
  • Contact Us
  • Mahzi Gene Therapy Clinical Trial
Pitt Hopkins Research Foundation
  • About Us
    • About Our Foundation
    • Board of Directors
    • Scientific Advisory Board
    • Our Blog
    • Pitt Hopkins Clinics
    • Contact Us
  • About Pitt Hopkins
    • About Pitt Hopkins
    • Causes and Inheritance
    • Could your child have Pitt Hopkins?
    • PTHS Genetic Testing
    • Apnea and Hyperventilation
    • Gastrointestinal Issues
    • Toilet training
    • Pitt Hopkins-Like Syndromes-1 and 2
  • Newly Diagnosed
    • Support
      • We are Here for You
      • Frequently Asked Questions
      • Contact Us
    • Inspiration
      • Our Stories
      • The Peter Pan Connection
    • Resources
      • Pitt Hopkins Clinics
      • Augmentative & Alternative Communication
      • Brochures & Handouts
  • Research
    • PHRF Funded Research
      • Current Projects and Clinical Trials
      • Pipeline for Therapeutics
      • Past Projects
      • Research Papers & Articles
      • Resources for Researchers
      • Apply for a Grant
    • Get Involved in Research Today
      • Ways to Get Involved
      • Mahzi Gene Therapy Clinical Trial
      • Unravel Clinical Trial
      • MTT Clinical Trial – 2024
      • Neuren Clinical Trial
      • Family Registry
      • Join the Pitt Hopkins Census
      • Natural History of Pitt Hopkins with Citizen Health
  • Events
    • 2024 Pitt Hopkins Conference – Denver {Recordings}
    • 2026 Virtual Science Symposium
  • Get Involved
    • Fundraise
      • Start a Personal Fundraising Campaign
      • Host a Fundraising Event
      • Million Dollar Mission 2022
    • Join Us
      • Join our Newsletter
      • Parent E-mail List Sign Up
      • Pitt Hopkins Clinics
      • Get Involved in Research / Clinical Trials
        • Census
        • Family Registry
      • 2024 Pitt Hopkins Conference – Denver {Recordings}
      • 2026 Virtual Science Symposium
  • DONATE
  • Menu Menu

Saturday: AAC & Education

A Family’s Journey

Jessica Fletcher, Pitt Hopkins mom, shared her family’s journey to finding a voice for her son Ian.

AAC Presentations

We had a great line up of speakers! Find their slides and talk details below.

Susan Norwell, M.A. Special Education – Slides for these presenations can be found here.

A) Presume Competence: The Value of Making the Least Dangerous Assumption 

B) Literacy is Essential: Where Do We Start? 

C) Emergent Literacy Basics: What Are the Foundational Blocks?

D) Conventional Reading: The Balanced Literacy Model

Jill Tullman, MS, CCC-SLP – Slides for these presenations can be found here.

A) Assessment and Intervention

B) AAC Tools and Strategies that Support Individuals with Pitt-Hopkins to Communicate and Participate

Pitt Takes on Mall of America

The presentations ended and our group took on Mall of America Saturday evening! We were fortunate to get donated wristbands for each family to enjoy the rides and fun at the mall. What a great way to wrap up our 2018 conference!

Conference Recap Video

Thank you to everyone who attended our 2018 Conference! We had such a great time and can not wait to see you all in 2020!

Search Search

Recent Posts

  • Unravel Announces First Patient Dosed in RVL-001 Trial
  • First Patient Dosed with Mahzi Gene Therapy
  • Unravel Clinical Trial
  • Mahzi Gene Therapy Clinical Trial
  • PHRF September 2025 Newsletter

Categories

  • 2018 Conference
  • Direct Mail
  • Events
  • Latest News @PHRF
  • Online Giving Pages
  • Our Stories
  • Personal Fundraising Campaigns

Archives

Get Latest Updates

Pitt Hopkins Research Foundation | Don't just hope for MIRACLES, FIGHT for THEM!

Get Involved

  • DONATE

  • RESEARCH

  • FUNDRAISE

  • CONTACT US

  • SHOP NOW

Connect with us

FACEBOOK
TWITTER
PINTEREST
YOUTUBE
INSTAGRAM
LINKEDIN

Latest News

  • Unravel Announces First Patient Dosed in RVL-001 TrialMay 12, 2026 - 9:26 pm
  • First Patient Dosed with Mahzi Gene TherapyFebruary 25, 2026 - 6:18 pm
  • Unravel Clinical TrialOctober 15, 2025 - 12:32 am
  • Mahzi Gene Therapy Clinical TrialOctober 14, 2025 - 10:11 pm
Copyright © 2018 Pitt Hopkins Research Foundation | Privacy Policy & Terms of Use | Website created by E's Web Design
Link to: RareiTees for a Cure Link to: RareiTees for a Cure RareiTees for a Cure Link to: Friday, June 22: Science Talks/Family Day Link to: Friday, June 22: Science Talks/Family Day Friday, June 22: Science Talks/Family Day
Scroll to top Scroll to top Scroll to top
X