Recordings available here:

https://pitthopkins.org/pthsconference2024recordings/

Please email us at information@pitthopkins.org for a passcode if you don’t have access.

Thursday, June 20, 2024

Scientific Symposium | 8:30am – 5:00pm

Our conference will kick off with the Pitt Hopkins Scientific Symposium on Thursday, which is focused on bringing the latest updates from all of our research labs around the world. We are very excited to be bringing the latest on gene therapy, protein replacement, clinical trials, and much more!

Please note: Pitt Hopkins parents are welcome to register but these talks will address the scientific community and therefore be very technical in content. This is an adult only part of the conference. Scientists will be giving lay talks for parents on Friday morning.

Welcome Meet & Greet |  5:00pm – 7:30pm

Thursday evening we invite families to gather in the atrium of the hotel to mingle and enjoy appetizers and drinks. A merchandise table will be set up to purchase all your Pitt gear! You can also pick up your welcome bags at this time.

• Hotel guests can enjoy a complimentary evening reception including beer, wine, wells and snacks {5:00pm – 6:30pm}

• 9:00pm – Pitt Dad gathering at the hotel bar

Friday, June 21, 2024

Research Update | 8:00am – 12:00pm

The morning will included lay research updates from our scientific community. Including but not limited to clinical trial results and updates, gene therapy progress, new research and more.

Presentations include Mahzi Therapeutics, Dr. James Adams from Arizona State University, Neuren Pharmaceuticals and more.

{12:00 – 1:00pm} Lunch is included in registration or you can purchase additional lunch tickets for those who are not attending the talks.

Family Topics |  1:00pm – 5:30pm

• 1:00pm – 2:00pm: Dr. Jessica Duis will join us for a conversation of best practices and medications for various Pitt Hopkins symptoms.

• 2:15pm – 3:45pm: Mom’s Break Out Group

• 4:00pm – 5:30pm: Dad’s Break Out Group

• 5:30 pm: Group Photo in the atrium of the hotel

{5:00 – 6:30pm} Guests of the Embassy Suites have a complimentary evening reception available. 

‘Let’s Glow Crazy’ Dance Party |  6:30pm – 8:30pm

Grab your dancing shoes because Friday night we are having a dance party!

• 9:00pm – Pitt Mom gathering at the hotel bar

Saturday, June 22, 2024

Communication, Education and More | 9:00am – 4:00pm

9:00 – 9:45 am: Strategies for Presuming Competence with Elizabeth Vosseller

10:00 – 11:00 am: Spelling to Communicate for People with Complex Motor Needs with Elizabeth Vosseller

11:00 – 12:00 pm: Beyond Requesting, why literacy matters and how to get there? with Audrey Davidow Lapidus

{12:00 – 1:00pm} Lunch is included in registration or you can purchase additional lunch tickets for those who are not attending the talks.

1:00 – 2:00 pm: IEPs & How to Advocate for Your Child with Heather Maginn & Jessica Fletcher

2:00 – 3:00 pm: Transitioning into Adulthood with Pitt Hopkins with Claudette Mirigliani & Jessica Fletcher

3:00 – 4:00 pm: Sibling Panel* Opening Remarks by Carlee Friar and Moderated by Francesca Pauca

*In an effort to allow the PTHS Siblings to share openly, no Pitt children are allowed in this discussion. Please plan accordingly.

In addition, we will also have a room with round tables on topics including seizures, gastrointestinal, behavior, sleep, school choice, and more – a come-and-go style open throughout the day Saturday.

4:00 pm: Conference Close

THANK YOU TO OUR 2024 SPONSORS!

OVER 94% OF ALL FUNDS DONATED GO TO RESEARCH

Our board and officers are parents and professionals who work diligently to ensure over 94% of all funds donated go toward research and our mission of finding a cure.

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