Awareness Day Guide: 5 Ways To Get Involved!

Join these amazing families and get started today!

1. Do a Fundraiser!

Fundraisers are a great way to get your community involved and build support for your child, while also funding important research for Pitt Hopkins syndrome. Please email us with any questions on how to get started today at phrf-fundraising@pitthopkins.org.

Quick to put together:

•Bake Sale

•Facebook Campaign

•Profit share with a local restaurant

•Get your school or work place involved – do a hat day/casual day

•Paint for a Cause – fun night doing canvas paintings

Takes a little more planning:

•5K/Walk

•Golf Tournament

•Oktoberfest/Dinner raffle

•Comedy show/raffle

Check out https://pitthopkins.org/fundraise/ for more ideas on how you can do a fundraiser to support Pitt Hopkins research. Be sure to let us know what you have planned so we can add it to our event list!

2. Fill out our Registry!

The registry is very important for gaining a better understanding of Pitt Hopkins syndrome as well as a tool for clinical trials moving forward. Make it a priority to fill out the registry during the month of September! Get started here.

3. Share on social media!

•Share your story on social media with family and friends

•Check the PHRF Facebook page for our social media campaign that we will be launching in September

•Change your profile picture to raise awareness (template available on Facebook!)

On September 18 be sure to wear your Pitt Hopkins gear and share a picture with us! When you share on Facebook, Twitter and/or Instagram, be sure to use #pitthopkins #beyondawareness to show how you are going beyond awareness this month!

4. Join an event in your area! 

Check out our events calendar to see if there is an event near you!

5. Donate to transform lives!

If you are inspired by the amazing individuals living with Pitt Hopkins syndrome, we ask you to consider making a donation to fund life-changing research today.