Ways to get involved…

1. Do a Fundraiser!

There are a lot of options from profit shares, to bake sales, to 5K walks and more! Check out https://pitthopkins.org/fundraise/ for more ideas on how you can do a fundraiser to support Pitt Hopkins research!

2. Fill out our Registry!

Registries are so important for future trials, understanding diseases and their course, and keeping us in touch with one another! Please take the time to fill our new registry out TODAY!

3. Share on social media!

You can change your profile picture on Facebook with the following the steps below:

1. Go to https://www.facebook.com/profilepicframes
2. Search for Pitt Hopkins Syndrome
3. Select the frame and size it to your profile pic.

Wear your Pitt Hopkins gear and share a picture with us! When you share on Facebook, Twitter and/or Instagram, be sure to use #pitthopkins #beyondawareness to show how you are going beyond awareness this month!

4. Join an event in your area! 

Check out our events calendar to see if there is an event near you!

5. Donate to transform lives!

If you are inspired by the amazing individuals living with Pitt Hopkins syndrome in the video below, we ask you to consider making a donation to fund life-changing research at pitthopkins.org/donate.