Questions you may have:

• How does the process work?

Families will submit an estimate of likely expenses upfront, which will be reviewed by Neuren and the PHRF. Any feedback will be given at this time, regarding the associated costs and any questions there may be. A sample of an estimated expenses form can be found here. At the end of the study, families will turn in all approved itemized receipts for reimbursement.

Please include the following information in your email:

• Subject Number (given at the clinic): _____________

• Age and gender of participant: _________________

• Home location (Town, State, Zip Code): __________

• Clinic site location attended: ___________________

• Number of caregivers traveling with participant (up to 2 allowed): ______

• Dates of travel (for each visit listed separately): ____________

• Dates seen in the clinic (for each visit listed separately): ____________

• Receipts — Each visit will need to be identified in the name of the file. (Example: Visit 1 – Food Receipt 1; Visit 1 – Food Receipt 2; Visit 2 – Food Receipt 1; Visit 2 – Hotel Receipt; Visit 3 – Flight Receipt Patient; Visit 3 – Flight Receipt Caregiver; etc)

Be sure to keep track of all itemized receipts associated with expenses for each visit, they are required for reimbursement.

• What is reimbursable? 

Reasonable travel expenses including travel (gas, airfare, taxi), lodging and food. Some guidance below:

• Travel for 1 patient + 1-2 caregivers.
• One hotel room at maximum $200/night.
• Food limit of a maximum $70 per day on-site for food per person.
• Gas (based on receipts), or mileage ($0.22/mile).

All costs submitted must have relevant itemized receipts attached and dates match days traveling/days in the clinic.

• When will I be reimbursed?

Reimbursement will happen at the end of the study, once the receipts have all been turned in and approved. The reimbursement will come via check from the PHRF. If you need to make different arrangements, please contact us for special circumstances.