Meet the Unconquerable Ayaan 

Ayaan is a beautiful 6 year boy with a million smiles and a contagious laugh!  Ayaan is extremely social and makes friends with anyone he interacts with.
He loves to dance, jump, clap, laugh and his favourite sport is swimming! Music is his passion and loves his keyboard, drums and xylophone. Ayaan enjoys his time at his school with his classmates and his time at the park with all his friends and most of all loves all his therapists!
Through this journey Ayaan has taught us how to be fearless, limitless and this has made us so much stronger. With his resilience, determination and amazing gusto for life we are always living life on a natural high. His positivity paired with his love and affection gives us so much confidence to imagine the impossible to become possible.

Ayaan and Pitt Hopkins 

Ayaan just turned 6 years old and he was recently diagnosed with Pitt Hopkins Syndrome (a rare genetic syndrome that only 1000 people globally have been diagnosed with) in May 2022. As a family we took this in our best stride after searching for so many answers and meeting numerous doctors in Singapore, the US and India. We finally had closure and could see a roadmap ahead for us. Ayaan continues to work hard in all his therapies including Occupational, Aqua, ABA, Music, Physiotherapy and most importantly Speech! Ayaan tries very hard to speak to us but his countless efforts unfortunately don’t translate to words just yet. We are confident he will get there with the intent he has to speak to us and tell us what he feels. In the meanwhile, we are grateful that his therapists work on an AAC app (Augmentative and Alternative Communication) and a Gesture Dictionary where he can often request for what he likes, tell us how he feels and demand to watch You Tube!

Shortly after Ayaan was diagnosed in May 2022, we learnt that there was a Pitt Hopkins Conference taking place in Chicago the very next month! We were fortunate enough to visit the US and attend the Pitt Hopkins Conference in June 2022.