Awareness Day Guide: 5 Ways To Get Involved!

Join these amazing families and get started today!

1. Do a Fundraiser!

Ideas how to get started!

•Facebook Campaign  – Facebook is such a great tool for non-profits, with ZERO fees taken out of your donation and is an easy way to reach all your family and friends!

•Get your school or work place involved – do a hat day/casual day

•E-mail Campaign

•Online Raffle

•T-shirt fundraiser

Check out https://pitthopkins.org/fundraise/ for more ideas on how you can do a fundraiser to support Pitt Hopkins research. Be sure to let us know what you have planned, we love to share ideas with our community!

2. Get involved in Research!

• Fill out the registry: The registry is very important for gaining a better understanding of Pitt Hopkins syndrome as well as a critical tool for current and future clinical trials. Make it a priority to fill out the registry during the month of September! Get started here.

• Join the global census to help us get an accurate count of how many individuals in the world have been diagnosed with Pitt Hopkins. This quick survey only takes 2-3 minutes.

• Join Invitae and the natural history study.

3. Share on social media!

• Share your story on social media with family and friends

• Tag the PHRF Facebook page in your September PTHS Awareness Day posts

• On September 18 be sure to wear your Pitt Hopkins gear and share a picture with us! When you share on Facebook, Twitter and/or Instagram, be sure to use #pitthopkins #beyondawareness to show how you are going beyond awareness this month!

4. Get decked out in Pitt Hopkins gear!

We have an entire Pitt Hopkins apparel collection with RareiTees. 100% of all sales support Pitt Hopkins Syndrome research initiatives. Start shopping now!

5. Donate to transform lives!

If you are inspired by the amazing individuals living with Pitt Hopkins syndrome, we ask you to consider making a donation to fund life-changing research today.