Entries by PHRF

Victor’s Story

This is Victor, our precious son. Our names are Theresa and Paul. Victor was born in 2005. He has a deletion of Chromosome 18q 21.2 – 21.32 / Pitt-Hopkins Syndrome. We also have two wonderful older girls, Sofia and Francesca, who are typically developing. Our family lives in North Carolina, USA. Victor loves to spend […]

Million Dollar Bike Ride 2018

Absolutely in awe of our team and Pitt Power! On May 20, 2018, for the 5th straight year of UPenn’s Million Dollar Bike Ride, they rode their hearts out! WE MADE THE 50k match!!! We did It!!! Pitt Power never ceases to amaze me!!! Less than a month ago we were way behind in our […]