Pitt Hopkins Research Foundation
Donate
The Pitt Hopkins Research Foundation thanks you for your generous donation. Our research, which began in 2012, was a direct result of your donations. Thank you doesn’t seem sufficient, but we’ll say it anyways: Thank you. Your gift gives so much more than money — it gives all of our families hope. To make an [...]
Our Mission
Welcome to the Pitt Hopkins Research Foundation (or PHRF). Our mission is to support research dedicated to finding a treatment, and hopefully an eventual cure of Pitt Hopkins and other similar disorders. Made up of families for families, the PHRF is also dedicated to supporting PTHS children with resource recommendations, parental support and the latest [...]
Our stories
Read about children and adults with Pitt Hopkins syndrome. They are all precious, unique, and loved by their families and by everyone who is blessed to know them. The symptoms of Pitt Hopkins vary between individuals, yet many share certain characteristics. These stories are written by parents, now a family through the love of their child. [...]
Fundraising
Fundraising campaigns and events are a vital part of the Pitt Hopkins Research Foundation. Many families spend an incredible amount of time, energy, and resources to fund research into finding a treatment and ultimately a cure for Pitt Hopkins syndrome.
Here are links to current PTHS fundraising events and campaigns:
- Race for Rylie, Quakerstown, Pennsylvania, June 22, 2013
- Walk for Olivia, Lincoln Park, Michigan, June 22, 2013
Palumbo family raises awareness about PTHS
Family raises awareness about Pitt-Hopkins syndrome By Issac Olson NDG NEWS, THE FREE PRESS–Quebec, Canada, May 7, 2013
Super Siblings in Neverland
This article was written by the Pauca family, sharing their daughters’ journey of having a sibling with special needs (PTHS). It appears in the Spring 2013 Exceptional Child magazine, (pages 16-17 online) a publication of the Piedmont Parent, North Carolina. Victor Pauca may age, but in many ways, he may never have to grow up. So [...]