image-1Organizing a 5K Race is a wonderful way to gather family, friends, PTHS families, and your community to support PTHS research.  In addition to being a successful fundraising activity, this kind of community event is wonderful for raising awareness and understanding.

Several families from different parts of the country have organized annual 5K Races in their communities.  Here is an example of the myevent websites they have created for these races:

Welcome to

PitT Hopkins Syndrome 5K

5K Walk/Run for Pitt Hopkins Syndrome

To see a list of our current and past events, please visit:

Please contact us at for more information.