• Join us for the PITT HOPPIN’ Dance-a-thon! This is going to be an amazing night full of dancing and fun! The event will be held under a tent and we will have a live DJ, dinner, dancing, give aways, and chances to win prizes. You will also get to meet Logan and her family and […]

  • HOT off the Press……….C.H. Robinson is hosting their 13th Annual Golf Classic on May 20th benefiting Anthony Mirigliani and Pitt Hopkins Research Foundation along with two other organizations. Do we have any golfers in the South Jersey or Philadelphia area that would like to join us? Please email Claudette Mirigliani at  if interested and she […]

  • The Pitt Hopkins Pedalers are back! Including $50,000 in matching funds that we were awarded from the UPenn Center for Orphan Disease Research, we ended up with over $100,000 for research from Million Dollar Bike Ride 2016! With those donations, we were able to fund the research of Dr. Marenda at Drexel University, and Dr. […]

  • June 25, 2017

    Join us on Sunday, June 25, 2017 as we come together for the 7th annual Race for Rylie event; an event to benefit the Pitt Hopkins Research Foundation. To register or find out more information, please visit: 5K Race, Kid Fun Run, Noncompetitive Walk Meet our RYLIE! We are Jack and Heather Maginn of Coopersburg, PA – two […]

  • Please help Jamie McFadden bring awareness for Pitt Hopkins Syndrome and raise funds to benefit the Pitt Hopkins Research Foundation.  Donate in honor of Jamie McFadden, at: Event: TOUGH MUDDER 2017, Mont St. Louis Moonstone, Coldwater, ON, Canada, August 19, 2017 jamiemcfaddenphf-postcard

  •   THURSDAY, MARCH 16, 2017 | 7:30PM | ASU GAMMAGE THEATRE | TEMPE, ARIZ. Do you enjoy live theatre? Love the magic of the story of Peter Pan? Would you like to save money with discounted tickets? Would you also like to help the Pitt Hopkins Research Foundation at the same time? Then join us […]

  • Ashton Green has quite the army. Many in his army are friends but several are family as well. We were approached before the holidays this year by one of my cousins letting us know of a decision he had made. Seth Bearden chose to run the 2017 Cowtown Ultramarathon on Sunday, February 26, in order […]

  • Summary of our 2016 Pitt Hopkins Research Foundation Scientific Symposium & Family Conference THURSDAY, NOV 3: Scientific Symposium — You can read abstracts from the talks here.   Coriell blood bank draw — We had nearly 20 patients submit blood samples for research at the conference. Thank you!  If you would like more information on […]

  • Rafa’s Cafe raised an astounding $32,000 for research into Pitt Hopkins syndrome, November 5, 2016, during the Dallas Family Conference. Raphael and Kathy Carreon, owners of Rafa’s, are the grandparents of Iris Eyres, who was diagnosed with PTHS last year. Thank you to all the generous friends, family, loyal customers, and Pitt Hopkins families who […]

  • WATCH OUT DALLAS, HERE WE COME! Announcing the 2016 Pitt Hopkins Research Foundation’s Scientific Symposium and Family Conference, November 3-5, 2016. We’ve got big shoes to fill after the DC Conference—but these boots make us think Dallas Texas will measure up just fine! FAMILY REGISTRATION PAGE (Family registration is now closed): SCIENTISTS REGISTER FOR THE […]

Pitt Hopkins Research Foundation. Don't just hope for MIRACLES, FIGHT for THEM!