• Giving Tuesday is one of the most important fundraising days for non-profits!  Please donate to the PHRF for giving Tuesday, by making a donation here:  DONATE OR donate through the Facebook Challenge:  On GivingTuesday, Facebook and the Bill & Melinda Gates Foundation will be matching up to $2 million of funds raised on Facebook for […]

  • Looking for some new Pitt gear?? You are in luck! Our PHRF Holiday store is now open — with lots of new options this year! Check it out and share with your family and friends!!  International shipping available — contact Tammy at and she can assist you with this. Open through Monday, November 27th -All orders […]

  • A HUGE THANK YOU to everyone that came out to support us Tuesday night!! It was a huge turnout and overwhelming beautiful to see how much love and support Quinn has!! We thank you all from the bottom of our hearts for extending your generosity, not just to our family, but to all the other […]

  • Texas Trekkers walk for Pitt Hopkins, November 4, 2017, was an AMAZING day! It would not have taken place without so many incredible friends and family. I just want to personally thank every single person that took the time to come out and support the one cause that will forever be my #1 mission…Pitt Hopkins Awareness […]

  • Mark your calendars! We are very excited to announce the next Pitt Hopkins Research Foundation conference will be held in Minneapolis, MN, June 21-23, 2018! Our 5th year of coming together to learn about research, resources that will help our children and bond as a Pitt Hopkins family is sure to be great! More details coming […]

  • In honor of Pitt Hopkins Awareness day, Quinn Doty has been named a PLAE-it-forward ambassador, for PLAE shoes! Use code GIVE364 at check out and 10% of your purchase will be donated to the Pitt Hopkins Research Foundation. This code does not expire and can be used with every purchase! Shop PLAE today and raise […]

  • A big thanks to Amber Skye, Mady’s mom, for organizing Carnival for a Cause, a 2 day event, to benefit the Pitt Hopkins Research Foundation! Oct 20th, 6-8 is a zumba/ bang superhero workout with music and vendors such as lipsense, scentcy, lularoe, doterra oils. Everyone will dress like a superhero and get their fitness […]

  • As Emilio’s parents, we would like to bring awareness to Pitt Hopkins Syndrome, a rare genetic disorder. Please join us on September 10, 2017, for our 1st Dare to be Rare – Race for Emilio 5K run/walk. ***Limited to the 1st 300 people*** Register: If you are unable to participate in the run/walk, join […]

  • The Pints for Pitt Hopkins Research Walk/Run/Cycle event is a family friendly event to help raise money and awareness of the Pitt-Hopkins syndrome that my daughter Sarah was diagnosed with 7 years ago. She is 15 now and one of the sweetest people you’ll ever meet. Her diagnosis however prevents her from being able to […]

  • Fundraiser for Pitt Hopkins Syndrome! Do you like running/walking? Then you can come on Saturday September 16 to Henderson Lake and for $10 you can run as long as you want. The person who runs the most rounds can win a nice prize! Lunch will be provided. Register before August 16 to get the t-shirt! […]

Pitt Hopkins Research Foundation. Don't just hope for MIRACLES, FIGHT for THEM!