• June 25, 2017

    Join us on Sunday, June 25, 2017 as we come together for the 7th annual Race for Rylie event; an event to benefit the Pitt Hopkins Research Foundation. To register or find out more information, please visit: 5K Race, Kid Fun Run, Noncompetitive Walk Meet our RYLIE! We are Jack and Heather Maginn of Coopersburg, PA – two […]

  • Please help Jamie McFadden bring awareness for Pitt Hopkins Syndrome and raise funds to benefit the Pitt Hopkins Research Foundation.  Donate in honor of Jamie McFadden, at: Event: TOUGH MUDDER 2017, Mont St. Louis Moonstone, Coldwater, ON, Canada, August 19, 2017 jamiemcfaddenphf-postcard

  • September 10, 2017

    As Emilio’s parents, we would like to bring awareness to Pitt Hopkins Syndrome, a rare genetic disorder. Please join us on September 10, 2017, for our 1st Dare to be Rare – Race for Emilio 5K run/walk. ***Limited to the 1st 300 people*** Register: If you are unable to participate in the run/walk, join […]

  • Million Dollar Bike Ride Totals are IN!!! AND WE DID IT!!!! 100K In the BAG!! THANK YOU!!! Every year we worry and stress that we aren’t going to make it. How can we keep raising the 50K for the match year after year? Our donors will get tired. Our families are spent. We are too […]

  • HOT off the Press……….C.H. Robinson is hosting their 13th Annual Golf Classic on May 20th benefiting Anthony Mirigliani and Pitt Hopkins Research Foundation along with two other organizations. Do we have any golfers in the South Jersey or Philadelphia area that would like to join us? Please email Claudette Mirigliani at  if interested and she […]

  • The Pitt Hoppin’ Dance-a-thon was an incredible success, thanks to the energy, organization, and generous hearts of Caroline, Jenny, and the entire Harris family.  Their inspiration was Logan Bomar, Caroline’s cousin and Jenny’s niece, who has Pitt Hopkins syndrome (PTHS).  The Dance-a-thon raised over $14,000 for research into finding a cure for PTHS. This beautiful story […]

  •   THURSDAY, MARCH 16, 2017 | 7:30PM | ASU GAMMAGE THEATRE | TEMPE, ARIZ. Do you enjoy live theatre? Love the magic of the story of Peter Pan? Would you like to save money with discounted tickets? Would you also like to help the Pitt Hopkins Research Foundation at the same time? Then join us […]

  • Ashton Green has quite the army. Many in his army are friends but several are family as well. We were approached before the holidays this year by one of my cousins letting us know of a decision he had made. Seth Bearden chose to run the 2017 Cowtown Ultramarathon on Sunday, February 26, in order […]

  • Summary of our 2016 Pitt Hopkins Research Foundation Scientific Symposium & Family Conference THURSDAY, NOV 3: Scientific Symposium — You can read abstracts from the talks here.   Coriell blood bank draw — We had nearly 20 patients submit blood samples for research at the conference. Thank you!  If you would like more information on […]

  • Rafa’s Cafe raised an astounding $32,000 for research into Pitt Hopkins syndrome, November 5, 2016, during the Dallas Family Conference. Raphael and Kathy Carreon, owners of Rafa’s, are the grandparents of Iris Eyres, who was diagnosed with PTHS last year. Thank you to all the generous friends, family, loyal customers, and Pitt Hopkins families who […]

Pitt Hopkins Research Foundation. Don't just hope for MIRACLES, FIGHT for THEM!