• September 16, 2017

    The Pints for Pitt Hopkins Research Walk/Run/Cycle event is a family friendly event to help raise money and awareness of the Pitt-Hopkins syndrome that my daughter Sarah was diagnosed with 7 years ago. She is 15 now and one of the sweetest people you’ll ever meet. Her diagnosis however prevents her from being able to […]

  • September 16, 2017

    Fundraiser for Pitt Hopkins Syndrome! Do you like running/walking? Then you can come on Saturday September 16 to Henderson Lake and for $10 you can run as long as you want. The person who runs the most rounds can win a nice prize! Lunch will be provided. Register before August 16 to get the t-shirt! […]

  • Please help Jamie McFadden bring awareness for Pitt Hopkins Syndrome and raise funds to benefit the Pitt Hopkins Research Foundation.  Donate in honor of Jamie McFadden, at: Event: TOUGH MUDDER 2017, Mont St. Louis Moonstone, Coldwater, ON, Canada, August 19, 2017 jamiemcfaddenphf-postcard

  • September 10, 2017

    As Emilio’s parents, we would like to bring awareness to Pitt Hopkins Syndrome, a rare genetic disorder. Please join us on September 10, 2017, for our 1st Dare to be Rare – Race for Emilio 5K run/walk. ***Limited to the 1st 300 people*** Register: If you are unable to participate in the run/walk, join […]

  • The Third Annual Love for Lakely Golf Tournament will be held on September 22, 2017, at Canebrake Club, in Athens, Alabama. This incredible event is sponsored by Aegis Technologies, in honor of Lakely Stapler and her mother, Teresa Smith.  Please contact us at: to sponsor or register for this event.  Thank you!         […]

  • Million Dollar Bike Ride Totals are IN!!! AND WE DID IT!!!! 100K In the BAG!! THANK YOU!!! Every year we worry and stress that we aren’t going to make it. How can we keep raising the 50K for the match year after year? Our donors will get tired. Our families are spent. We are too […]

  • Race for Rylie 2017 was a great success! We earned over $12,500 for the Pitt Hopkins Research Foundation. Thank you to all of the amazing fundraisers, participants, donors, sponsors, family members, friends, and other Pitt families who made it such a special day. I can’t thank you enough for the love and support you give […]

  • HOT off the Press……….C.H. Robinson is hosting their 13th Annual Golf Classic on May 20th benefiting Anthony Mirigliani and Pitt Hopkins Research Foundation along with two other organizations. Do we have any golfers in the South Jersey or Philadelphia area that would like to join us? Please email Claudette Mirigliani at  if interested and she […]

  • The Pitt Hoppin’ Dance-a-thon was an incredible success, thanks to the energy, organization, and generous hearts of Caroline, Jenny, and the entire Harris family.  Their inspiration was Logan Bomar, Caroline’s cousin and Jenny’s niece, who has Pitt Hopkins syndrome (PTHS).  The Dance-a-thon raised over $14,000 for research into finding a cure for PTHS. This beautiful story […]

  •   THURSDAY, MARCH 16, 2017 | 7:30PM | ASU GAMMAGE THEATRE | TEMPE, ARIZ. Do you enjoy live theatre? Love the magic of the story of Peter Pan? Would you like to save money with discounted tickets? Would you also like to help the Pitt Hopkins Research Foundation at the same time? Then join us […]

Pitt Hopkins Research Foundation. Don't just hope for MIRACLES, FIGHT for THEM!