• September 10, 2017

    As Emilio’s parents, we would like to bring awareness to Pitt Hopkins Syndrome, a rare genetic disorder. Please join us on September 10, 2017, for our 1st Dare to be Rare – Race for Emilio 5K run/walk. ***Limited to the 1st 300 people*** Register: If you are unable to participate in the run/walk, join […]

  • September 16, 2017

    The Pints for Pitt Hopkins Research Walk/Run/Cycle event is a family friendly event to help raise money and awareness of the Pitt-Hopkins syndrome that my daughter Sarah was diagnosed with 7 years ago. She is 15 now and one of the sweetest people you’ll ever meet. Her diagnosis however prevents her from being able to […]

  • September 16, 2017

    Fundraiser for Pitt Hopkins Syndrome! Do you like running/walking? Then you can come on Saturday September 16 to Henderson Lake and for $10 you can run as long as you want. The person who runs the most rounds can win a nice prize! Lunch will be provided. Register before August 16 to get the t-shirt! […]

  • Edith, daughter of Lance and Heather Sherman, is a sassy, spunky, energetic, and very happy little 4 year old. She was born July 3, 2013 normal and healthy, or so we thought. At about 3 months old, we found out Edith had torticollis and had to start physical therapy. She did great and seemed to […]

  • We hope you can join us Sunday, Sept 17th, 4-8pm at the Indianola Hy-Vee Market Grille raising money for Pitt Hopkins research! Specials that evening include 1/2 price appetizers , $4 desserts and Kids Eat FREE (with purchase of a $9 adult meal). Looking forward to a great night!         We are […]

  • September 18, 2017

    Please join Anthony Mirigliani to help create AWARENESS for PITT HOPKINS SYNDROME on Monday, September 18, 2017 at Chick-fil-A in Mantua, NJ from 5-8 pm. A percentage of the proceeds go directly to the Pitt Hopkins Research Foundation. If you are unable to join us on Awareness Day please consider donating to the Pitt Hopkins […]

  • Please help us turn DREAMS into REALITY with ACTION !!! Awareness Day is September 18th. This year we are stealing (with permission) a fantastic theme from Pitt Mom Andrea Haefele. She has taken the idea of Awareness a step further and calls her movement #BeyondAwareness. Check out her excellent blog post here.   The idea […]

  • The Third Annual Love for Lakely Golf Tournament will be held on September 22, 2017, at Canebrake Club, in Athens, Alabama. This incredible event is sponsored by Aegis Technologies, in honor of Lakely Stapler and her mother, Teresa Smith.  Please contact us at: to sponsor or register for this event.  Thank you!         […]

  • September 23, 2017

    Ask anyone who has met Calvin Lapidus and they will universally comment about his infectious smile.  Cal has the greatest smile I’ve ever seen.  Laughter and smiles are common for children with Pitt Hopkins Syndrome (PTHS).  But these smiles mask the struggle that each child and their family engages in on a daily basis.  PTHS […]

  • September 23, 2017

    Eric and Amanda Strasburg are so excited to announce the first annual Pitt Hopkins Fest presented by Gate City Brewing Company and The Wing Cafe & Tap House. September 23rd – Save the date! Looking forward to hanging out with amazing friends for a great cause!

Pitt Hopkins Research Foundation. Don't just hope for MIRACLES, FIGHT for THEM!