In the spring of 2008, two families (Victor’s and Christopher’s) co-founded the International Pitt Hopkins Syndrome Support Group on Google Groups, shortly after receiving a diagnosis of PTHS. Theresa, Victor’s mother, and Sue, Christopher’s mother are the managers of this support group. The group now has over 250 families with children with Pitt Hopkins syndrome, from many different countries around the world, including the US, the Netherlands, the UK, Canada, Germany, France, Italy, Poland, Sweden, Ireland, Austria, Switzerland, Spain, Denmark, Norway, Cyprus, Brazil, Australia, New Zealand and Japan.
When joining, please request membership with a statement of your connection with Pitt Hopkins syndrome. http://groups.google.com/group/pitt-hopkins/about