Hosted by Eli Adamson’s family
July 26, 2014
Baldwin City, Kansas.

Our event was a success. We had 35-40 guests. My friends, Lesley and Jessica, 2 other Pitt Hopkins moms, did an awesome job of sharing with the group about how things got started (in 2008 with only 4 families diagnosed). They shared about how the research foundation started in 2012 and that in only 3 years our group of less than 400 families has raised $900,000!!!! AND that of the 6 research teams studying PTHS, one team has been awarded a $1.8M grant from the NIMH…all because we funded their small research projects. It gives great validity to the research. All accomplished through bake sales, t-shirt sales, 5Ks, auctions and events like the one we held which will hopefully be duplicated by other PTHS families. The PTHS families are an amazing group of people, with a ‘can do it, will do it, doing it, did it, doing it again’ spirit.

Our event has raised $1700 so far with more donations coming in!!!

I am so blessed to have such fantastic friends, family and community who are willing to lock arms with my family in a fight for a better future for Eli and the other Pitt Hopkins children.